Clara's fight

Since I was in second grade, I had been suffering from pain in my shoulder, which seemed to be muscular in origin. In this logic, many sessions of physiotherapy and osteotherapy were prescribed, without result. Indeed, it is only in the senior class, on September 3, 2019 following an MRI and a CT scan, that the radiologist identifies a ball, the size of a golf ball, at the level of the 5th thoracic vertebra which corresponds to a bone tumor and which explains the chronic pain. The biopsy performed a few weeks later revealed that it was an osteosblastoma, which is a benign tumor. The anxiety subsides momentarily.

Nevertheless, the second biopsy performed following the first operation in December 2019 at the Georges Pompidou European Hospital will conclude that it is an osteosblastoma-like osteosarcoma. A malignant tumor but assimilated to a low grade osteosarcoma. Alas, this was not the case because it was a high-grade osteosarcoma. This conclusion will be final and will only be reached until after the second emergency operation performed in May 2020 in the context of an early recurrence.

This will be followed by a first course of chemotherapy at the Curie Institute in June and a second one in July 2020, the very disappointing results of which led the medical team to change strategy and initiate a course of 27 radiotherapy sessions.

A third course of chemotherapy will be initiated in September before the operation on October 20, 2020 to remove the 3 vertebrae affected by the tumor. Despite all the difficulties of such an operation lasting seven hours, it is a success and a fourth session of chemotherapy can then be initiated.

Unfortunately, a few days later, the scar became disunited, forcing the surgeons to perform a 4th operation with a skin graft and displacement of the large dorsal muscle in order to strengthen the scar, which had been weakened by the treatments.

Today I am in remission and I awaiting my 5th operation which hopefully will be the last. This will consist in consolidating the implant that came to replace the removed vertebrae by a bone autograft.

The chain of solidarity triggered by my illness is just incredible and it is simply overwhelming to realize it. There are no words to describe the dedication of all the hospital staff and of course to thank the surgeons who operated on me.

They all deserve immense respect and I have boundless gratitude for them. So please support them by making a donation for pediatric cancer research.

A few words from our volunteers

Gregory aime beaucoup le sport et c’est un athlète de haut niveau

Récemment sensibilisé à la cause du cancer des enfants, j'ai décidé de m'impliquer encore d’avantage en 2020 quand j’ai appris que la fille d’un collègue et leur famille allaient devoir lutter contre la maladie. Pratiquant la course à pieds de manière régulière, je n’hésite pas à porter les couleurs d’enfants sans cancer pendant les sorties d’entraînement en espérant sensibiliser un maximum de gens sur cette cause.

Cela fait maintenant 6 ans que je me suis fait embarquer dans l'aventure par Vincent, mon collègue et ami. 6 ans que je ne regrette pas ... parce que cela m'a permis :

  • de parler à mes enfants de ce que vivent d'autres enfants moins chanceux,
  • de courir avec eux pour qu'ils comprennent l'engagement bénévole,
  • de rencontrer des voisins sur le marché ou des collègues lors de Coffee Corners pour les sensibiliser,
  • d'aller à la rencontre de familles éprouvées mais portées par cette force que tout reste à faire,
  • de faire équipe avec les bénévoles de Marie Notre Etoile et de mettre en pratique mes talents comme me transformer en webmaster.
  • de me transformer en organisateur de concert, de gestionnaire de billetterie, de placeur de salle de spectacle, de commentateur de parcours de golf, de conducteur de caddie, ...

Alors je ne regrette pas et j'accompagne Vincent et l'équipe afin de dépasser chaque année nos objectifs de collecte et de nous retrouver pour courir ces quelques kilomètres ensemble.